Congenital Heart Disease Page
Adult Congenital Heart Disease
Welcome to the CardioNerds Adult Congenital Heart Disease Series Page!
With landmark advances in the care of children with congenital heart disease, survival has improved, and more are living into adulthood. There are now more adults living with congenital heart disease than children. This is no longer a pediatric specialty alone. This growing population requires a specialized and personalized approach from multidisciplinary teams. While not every CardioNerd will specialized in ACHD, we will all have the opportunity to touch the lives of adults living with CHD, recognize their unique needs, and refer them to the appropriate centers if and when needed.
The CardioNerds Adult Congenital Heart Disease (ACHD) series provides a comprehensive curriculum to dive deep into the labyrinthine world of congenital heart disease with the aim of empowering every CardioNerd to help improve the lives of people living with congenital heart disease.
This series is multi-institutional collaborative project made possible by contributions of stellar fellow leads and expert faculty from several programs, led by series co-chairs, Dr. Josh Saef, Dr. Agnes Koczo, and Dr. Dan Clark.
The CardioNerds Adult Congenital Heart Disease Series is developed in collaboration with the Adult Congenital Heart Association, The CHiP Network, and Heart University.
Episodes
Meet Our Collaborators!
Adult Congenital Heart Association
Founded in 1998, the Adult Congenital Heart Association is an organization begun by and dedicated to supporting individuals and families living with congenital heart disease and advancing the care and treatment available to our community. Our mission is to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes. Visit their website (https://www.achaheart.org/) for information on their patient advocacy efforts, educational material, and membership for patients and providers
CHiP Network
The CHiP network is a non-profit organization aiming to connect congenital heart professionals around the world. Visit their website (thechipnetwork.org) and become a member to access free high-quality educational material, upcoming news and events, and the fantastic monthly Journal Watch, keeping you up to date with congenital scientific releases. Visit their website (https://thechipnetwork.org/) for more information.
Heart University
Heart University aims to be “the go-to online resource” for e-learning in CHD and paediatric-acquired heart disease. It is a carefully curated open access library of educational material for all providers of care to children and adults with CHD or children with acquired heart disease, whether a trainee or a practicing provider. The site provides free content to a global audience in two broad domains: (1) A comprehensive curriculum of training modules and associated testing for trainees. (2) A curated library of conference and grand rounds recordings for continuing medical education. Learn more at www.heartuniversity.org/.
